Friday, 5 August 2011

On my mind - National Disability Insurance Scheme

To join in On My Mind just visit here.

Change is on my mind today.  Earlier this week I attended a morning Disabili-tea held by a wonderful woman I know.  These were held across Australia to raise awareness of the proposed NDIS.

I really hope the average Aussie supports it because we need it badly.  Earlier this week the productivity commission handed it's report to the government, so here's hoping we will see some change!

I fancy myself a bit of an expert on the current disorganised system because personally, I will be travelling over 200 kilometres today will two preschoolers in tow to access early education services for one of my children.  We do this twice a week.  And no, we don't live back of Bourke!

Have a lovely weekend everyone!

7 comments:

Chris said...

Hi Linda, Just popped over from Down To Earth. I truly hope the NDIS goes through and you receive all the financial support and more from the government. I know only too well the difficulties families experience when faced with hardships such as yours. Have a lovely weekend.

rhonda jean said...

I hope you get what you need, Linda. I wish you and your group all the best.

Tania @ Out Back said...

Change is always a good thing. Good luck with it all. I joined the Every Australian Counts facebook page and will have a better look a bit later.

Thanks for sharing whats on your mind today.

Dragon (Karen) said...

Good luck with this adventure, it really needs many people to get behind it, and to educate people who don't understand the plight of those who are disadvantaged due to having a disability.

Linda said...

Thanks everyone for your support. That's excellent that you had a look at the 'Every Australian Counts' campaign Tania. And Karen you are right, people do need to be educated but I do it badly. I'm very passionate about the issue and always sound like I am on a soap box when I talk about it. For example, it's not just about children born with a disability - it's people who have accidents and illness later in life, it's elderly and frail people, basically it will affect most of us directly or indirectly at some point in our lives. Living in such a well off country, I wish we placed more emphasis on the people around us. The stories of lack of support that I could tell you would shock you! Again thank you all for being the people who care about others.

Ann at eightacresofeden said...

Thank you for visiting my blog Linda and what a worthy cause the tea you attended was for. I used to work in a very well funded disability support service as an occupational therapist in England many years ago and was shocked when I moved down under and experienced first hand how little support there was for people with disabilities in the community. It was like stepping back in time. I am always appalled when I read about young people who have head or spinal injuries who end up in nursing homes. Saddened too when I know of families who cannot access regular respite care they desperately need for their loved one and the waiting time for special needs assessments let alone treatment is ridiculous. I also appreciate your comment about not being out 'back of Bourke' - it seems regional areas of Australia are still referred to as 'the bush'. I'm still trying to fathom this!

Linda said...

Ann, I have seen documentaries where families have moved back to England because they couldn't access decent therapy for their children in Australia. It really saddened me to know that so much knowledge is out there, but none of our governments have cared enough to put these fantastic education services in place. We found out that our child had a disability when I was pregnant and chose to ignore advice to terminate. A child is still a person whether or not they have a disability! I wasn't too worried about the future because I know there have been so many advances in researching how to teach children with disabilities. At that stage, I assumed they would be available in a country with as many resources as ours. I was sorely mistaken. A family with a child with extra needs has so much more pressure on them than the average family and sadly this pressure is increased by having to fight tooth and nail to assure a future for our children. And all I have commented on is just the preschool years. It is going to be a long and tiring journey! It is not, however, all doom and gloom in our house. Our little guy is amazing and is lucky enough to have been born into a family who believe in a future for him. I have discovered I am stubborn and tenacious and will continue to battle for opportunities for ALL people. Thanks for your interest. Your blog is a lovely read and I always look forward to your posts.